Tatum Update: Tatum had a pretty fair day. She has still had times when she has been really gurgly, but she seems to work through it. Lately it has been a little harder to get any of the secretions out with the suction machine. I hope that the mucus is not going deeper into her lungs. I suspect if that were happening that she would not be able to keep her oxygen sats where they need to be and that she would not then have times of breathing clear. She is still pretty clear when she is sleeping and for awhile after she wakes up. She is such a mystery to me. I am really hoping that maybe this really has been a cold that we have been fighting and that maybe it is just getting a little better? Who the heck knows. She has been pretty sleepy the past few days. She seems to be awake from about 5am to about 9am and then she will sleep for several hours and then she will be awake for several hours and then sleep at night. So it seems like she is sleepy because her naps seems long but really she is still awake quite a bit. With all of the meds we give her at night I can't believe she can be awake at all.
This morning when Hilary woke up I was holding her hand and helping her down the stairs and she said "Tatum is going to live with Trevin, I will miss her. Zoe will miss her too." (Zoe is our dog:) and Hilary's best friend) Out of the mouths of babes. It sort of took me back. I knew that someone had told her that, but it was just odd because for the past few days I had been thinking about how to talk to her about it. I told her that I would miss her too, but we would see her again. (Lance did say that he had talked to her about Tatum being sick and going to be with Trevin, it was not a premonition. Then she moved on. Heart breaking, but good for her to start getting the idea in her head a little bit. She is so bright, I am sure she will get the understanding along with the comfort that she needs. I hope we all do. I know we will. I just don't want to be there yet, ever really:)
May I just say again how grateful I am for the wonderful people who have rallied around our family. I know that we could not have survived without good friends and family.